Publications
CanFASD Publications
The Canadian Guidelines and the Interdisciplinary Clinical Capacity of Canada to Diagnose Fetal Alcohol Spectrum Disorder - In 2005, the CMAJ published the Fetal alcohol spectrum disorder: Canadian guidelines for diagnosis. The intent of this publication was to encourage a more consistent interdisciplinary team approach and diagnostic procedure for FASD diagnoses. That same year, the Canada FASD Research Network (CanFASD) determined the locations and capacity for interdisciplinary FASD diagnosis across Canada. This paper discusses how successfully these Guidelines have been in bringing consistency to FASD clinical work. J Popul Ther Clin Pharmacol Vol 18(3):e494-e499; October 16, 2011. Sterling K Clarren, Jan Lutke, Michelle Sherbuck. Link to Download
Developing effective, culturally appropriate avenues to FASD diagnosis and prevention in northern Canada - this paper describes two research initiatives that are being undertaken by members of the Canada FASD Research Network involving collaborations between researchers, clinicians, service providers and community members in the Canadian north. Salmon, A. and Clarren, S.K. (2011). Developing effective, culturally appropriate avenues to FASD diagnosis and prevention in northern Canada. International Journal of Circumpolar Health, 70(4), 426-433. Link to Download
The Brain Summit Symposium, held in March 2009, brought together psychologists, occupational therapists, speech and language pathologists and pediatricians from FASD Clinical Programs across Canada, to enhance our collective understanding of the National Diagnostic Guidelines as they relate to the diagnosis of the domains of brain function. Download Report
Building Capacity for Fetal Alcohol Spectrum Disorder Diagnoses in Western and Northern Canada,
is a study, published by that was conducted in 2006, to determine the FASD clinical activity in Canada
Northwest. Building Clinical Capacity for Fetal Alcohol Spectrum Disorder Diagnoses in Western and Northern Canada. Clarren, S. , Lutke, J.; Can J Clin Pharmacol Vol 15 (2) Summer 2008:e223-e237; June 10, 2008. Link to Download
Use of Psychometric Tools for Evaluating Individuals with FASD: Reaching Consensus - CanFASD has been collaborating with
diagnostic clinics to support conducting comprehensive assessments for individuals with FASD. Our Research Network developed a two-phase process to
bring together representatives working within
diagnostic
clinics. During
several months of 2007, we focused
on the approaches and tools that clinics were using in the diagnostic process. These two reports chronicle
the process and outcomes of these sessions.
Download Phase 1, Download Phase 2
Research Opportunities and Challenges - Report on the consultation meetings that provided the initial direction and focus for the Canada FASD Research Network. 2005.
Download
Edited Books
Prevention of FASD: Who is Responsible? - For the first time, a book that provides a complete overview of prevention strategies of FASD and their effectiveness on a global scale. This book is a useful companion to Fetal Alcohol Spectrum Disorder: Management and Policy Perspectives. Clarren, S., Salmon, A., & Jonsson, E. (Eds.). (2011). Prevention of Fetal Alcohol Spectrum Disorder FASD: Who is responsible? Weinheim, Germany: Wiley–VCH. Link to this book
Fetal Alcohol Spectrum Disorder: Management and Policy Perspectives - The first comprehensive resource for over a decade on the molecular basis, prevalence, treatment options, socioeconomic impact and prevention strategies of FASD. An invaluable resource for every professional dealing with the diagnosis, prevention and treatment of FASD, from researchers, to health professionals, to social workers. Riley, E. P., Clarren, S., Weinberg, J., & Jonsson, E. (Eds.). (2010). Fetal Alcohol Spectrum Disorder FASD: Management and Policy Perspectives of FASD. Weinheim, Germany: Wiley–VCH. Link to this book
Network Action Team Publications
NAT 1 - Research in Diagnostics
Linking diagnosis and prevention: building the next generation of policy responses - Although many promising practices have been developed and implemented, efforts to achieve and sustain prevention of FASD at a population level remain elusive. This document looks at some of the key questions and areas of concern, March 2011. Download
Clarren, S. K., Chudley, A. E., Wong, L., Friesen, J., & Brant, R. (2010). Normal distribution of palpebral fissure lengths in Canadian school age children. The Canadian Journal of Clinical Pharmacology, 17(1), e67-e78. Link to download
Clarren, S. K., & Salmon, A. (2010). Prevention of fetal alcohol spectrum disorder: Proposal for a comprehensive approach. Expert Rev. Obstet.Gynecol., 5(1), 23-30. Link to download
Clarren, S. K. (2009). Time for the development of effective approach to the prevention of fetal alcohol spectrum disorder. Expert Rev. Obstet.Gynecol., 4(5), 483-485. Link to download
NAT 2 - Intervention on FASD
Link to our blog - FASD Intervention
Intervention Across the Lifespan: Where are we at and where do we need to go? - identifies the existing gaps in research and provides an overview of the key needs at different developmental stages within the lifespan of an individual with FASD. Download
Quarterly e-newsletters
Volume 5
Volume 4
Volume 3
Volume 2
Volume 1
Prevention: NAT 3 - Evaluating FASD-Specific Public Health and Education Materials
Thurmeier, R., Deshpande, S., Lavack, A., Agrey, N., & Cismaru, M. (2011). Next steps in FASD primary prevention in Fetal Alcohol Spectrum Disorder: Management and Policy Perspectives of FASD (eds E.P. Riley, S. Clarren, J. Weinberg, and E. Jonsson) Wiley-VCH Verlag GmbH & Co. KGaA, Weinhein, Germany, pp. 175-192. Link to publication
Cismaru, M., Deshpande, S., Thurmeier, R., Lavack, A., & Agrey, N. (2010). Preventing fetal alcohol spectrum disorder: The role of protection motivation theory, Health Marketing Quarterly, 27, 66-85. Link to download
Saskachetwan Prevention Institute. (2009) Creating Effective Primary Prevention FASD Resources: Evaluation Processes in Health Promotion. Prepared for Canada Northwest FASD Research Network.
Prevention: NAT 4 - Evaluation of FASD Mentoring Programs
Establishing a Research Agenda - The final report for 2010-2011 that summarized the first year of operations. Download
Evaluation of FASD Mentoring Programs - Poster presentation from the 4th International Conference on Fetal Alcohol Spectrum Disorder – The Power of Knowledge: Integrating Research, Policy, and Promising Practice Around the World, held in March 2010, Vancouver, BC. Download
Quarterly e-newsletters
Winter 2012, Volume 4
Fall 2011, Volume 3
Summer 2011, Volume 2
Spring 2011, Volume 1
Prevention: NAT 5 - FASD Prevention from a Women's Health Determinants Perspective
Link to our blog - Girls, Women, Alcohol and Pregnancy
Relational Approach - The value and importance of supportive and timely connections (2010). FASD Prevention from a Women's Health Determinants Perspective. Download
Consensus Statement - 10 Fundamental Components of FASD Prevention from a Women's Health Determinants Perspective, 2010. Download
Barriers to Care - an information sheet describing the issues that pregnant women and mothers with substance use problems face when trying to access supports, 2007. Download
Team description, their membership and their research activities, 2010. - Download
Rutman, D., & Van Bibber, M. (2009). Parenting with Fetal Alcohol Spectrum Disorder. Int J Ment Health Addiction. Received: 30 May 2009 / Accepted: 23 November 2009. doi 10.1007/s11469-009-9264-7. Link
Team description, their membership and their research activities, 2009. Download
Coalescing on FASD Prevention from a Women's Health Determinants Perspective: FACE poster, 2007. Download
Team description, their membership and their research activities, 2007. Download
Reports and Publications from Other Sources
Key Worker and Parent Support Program Evaluation Reports - The following pdfs are evaluation reports regarding services available
through the Ministry of Children and Family Development's (MCFD) Key
Worker family support services. Key Workers assist families in
understanding FASD by providing education and information specific to
the needs of the child and family. They are familiar with community
resources, assist families in accessing support, health and education
services and are involved in the development of local support services.
These family support services are being reviewed as part of an ongoing
three-year evaluation by a contracted evaluation team. Expansion of the
FASD support programs will be based on the evaluation results. The
following reports are available in pdf format:
First year formative evaluation report and the executive summary.
Second year formative report and the executive summary.
The first summative report and the executive summary.
For further information you can go to the Ministry of Children and Family Development website.
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